Comments on “More Resources on Problems With the Daytrana ADHD Patch”
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135 Responses to “More Resources on Problems With the Daytrana ADHD Patch”
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Amy30
I just got this email from Shire:
Editor’s Note: We have posted this letter separately, along with further information about the Daytrana patch withdrawal, in a new article here:
Shire Recalls Daytrana ADHD Patches in ‘Voluntary Market Withdrawal’
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Tracy29
RE: Michelle
Hi!
If your child is having trouble sleeping due to the Daytrana patch, try giving him/her 1 to 3mg of Melatonin an hour before bedtime. This should help with sleeping. It is a safe, all natural(it’s already in our bodies) suppliment and you can buy it over the counter at a fairly low price; depending on the brand, amount and dose)
I use this for my son and it works very well. I also take it myself. :o)
On rare occasions, you can also give 25-50mg of Benadryl before bedtime as well. Benadryl is an antihistamine that is known to cause drowsiness. Although i do not reccomen giving it every night; just occasionally.
I am also doing some research on magnesium, which has been proven to give a ‘calming’ and sedative effect on some with ADHD. But it needs to be giving at low doses at first to prevent diarrhea. You might want to google Magnesium for yourself and check it out!
Good luck and let us know how it works for you.
Tracy -
susan28
My son has had great luck with the patch. We have avoided the “peaks and valleys” of using pills during the day. His neurologist has him taking a low dose of risperdal when I remove his patch. This seems to help him “come down” from the patch and he has no problem sleeping. He’s up at 7-7:30 am and down around 8pm with no sleep issues. At first I found the backing difficult to remove but I have found that if I get a small corner started and pull fast it comes off with no problems. Thanks for everyones comments-I hope mine helps you. This really is a great site!
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Michelle27
Hi, my son just started the patch. Does it usually make the child not be able to go to sleep at night. The first day we took it off at 6 and he could not go to sleep until 11 at night. So the next day we took it off at 4 and still he can not go to sleep. Please HELP! I love this med conpared to the pills. It works so much better, he is not dazed, and he pays attention at school so much better with the patch. He is a better child at home to be around. Any help will be appreciated.
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Terry26
Has anyone had trouble with the patch affecting the eyes as far as constant blinking or extremely dry? My 12 yr old started the Daytrana patch last spring. It did seem to work for him until he developed an irritation with his eyes. It is so bad that he cannot have the patch on anymore and even then he still has one eye that completely turns a different way when he blinks. I was just wondering if anyone else has had any issues. Need some feedback.
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Austin excited momma25
I am so excited about this patch I could scream. My 10, going on 11, has been on some kind of ADHD med for 5 years now. There was always something wrong or a side affect with the other med’s. He has only been on the patch for 4 days and I can not believe my eyes, or my sanity for that matter! He was on Focalin XR before this and I thought that was the “magic” pill that was gonna be the one. He doctor suggested trying the patch because the pills always wore off sooner that what they were suppose to. The patch takes a little longer to start working, but when it does, watch out. My son has been THE BEST KID EVER. I almost cry every time I think about it. He has been the most loving and easy going little person that I have ever seen in him in such a long time. He made it through a basketball game with his brother (younger) and his dad for the first time without getting mad and thinking that someone cheated and was picking on him. It was truly amazing. I did have a problem with getting the backing off but once I tried the freezer trick, no problem now. Thank you to whoever made such a great product.
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Nancy24
Much to my surprise, Daytrana didn’t work for me. I have gone back to pills. I am taking ritalin to provide a much-needed energy boost in connection with clinical depression. My doctor had suggested the patch because she thought the continuous release delivery of the drug would be absorbed into my system more evenly, and avoid the bladder irritation that the pills seemed to cause (I have a problem with overactive bladder). Unfortunately, after a day and a half, the patch seemed to completely lose all effectiveness. At my doctor’s suggestion, I went off the patch for a few days to see what it would feel like to not be using it at all and there was barely any difference between no patch and a 30mg patch. Apparently my body didn’t absorb the medicine through the skin. Maybe it is because I am an adult, and the patch is designed for kids. In any event, I’m back on twice-a-day ritalin pills at the same dosage as the patch and feeling good. If this continues, I”m going to try Adderall XR so that I only have to take a pill once a day. Wish me luck!
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Nancy23
Hi Fran. I did not have trouble getting the first side of the backing off, but the second side was a real pain. To remove the first side, I would bend the patch in half, along the middle crosswise, and gently fold the patch in half. You don’t want to make a crease, because there is a membrane in the patch that controls the delivery of the drug, and you don’t want to damage it (I don’t know whether folding is a problem, but I did read elsewhere that the mfgr said not to cut the patches in half, because that would damage the membrane). You want to fold the patch so the side with the writing is on the inside. You can fold either straight across or along the line where the backing separates. Try both ways and see what works better for you. If you fold straight across, the patch will form a sort of upside down U shape, sort of like the top of a matchbook.
Holding the patch in its folded position, often one corner of the backing will pop up right away. Don’t remove the backing yet! Just fold the corner of the backing firmly (making a hard crease) so that the corner sticks straight up and away from the patch. By folding the corner of the backing firmly, you make a sort of handle which you can grab onto to remove the first side of the backing. But don’t remove the backing yet.
The second side can be a bit trickier. Still holding the patch in its upside-down U shape, gently sort of roll the folded edge back and forth. I do this by holding one side of the patch in each hand and moving the hands up and down alternately, giving gentle pressure to the fold, until the second corner of the backing pops away from the patch. You may need to give the corner a little shove with a fingernail to get it started, but the gentle rolling motion should do the trick. Then you can hard fold the corner of the backing, as you did with the first side. I know that my description of this step may be a bit confusing, so if you need further explanation, just post to the board and I’ll try to do better. Maybe I could take some photos and show you what I’m having trouble describing in words.
Once you’re ready to peel the backing off, pull slowly. I found that the backing seemed to pull easier that way.
Hope this helps!
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Fran22
My 15 year old son has been on almost every form of Ritalin - long and short acting, and none of them worked for very long, and never throughout the day. He required almost the maximum dose for any effect earlier in the day to get moving, and there was only so much more I could add throughout the day, so by the end of the day he was unmedicated and unable to focus. Also, as he has Tourette’s and OCD in addition to ADHD, he’s been on SSRI’s which have resulted in a huge weight gain. Unlike most kids, he hasn’t been “plagued” with loss of appetite from his stimulants. All this changed when we started him on the Daytrana patch a year ago. For the first since we’ve started him on stimulants (7 years?) it’s effects lasted throughout the day, and he wasn’t eating compulsively all day long. He grew 3 inches this year and lost 25 lbs., a net loss of 40 lbs…he looks great and feels good about himself. BUT those patches are driving us crazy!! We use the 30mg patches and getting the backing off is miserable. W’ve tried the frezer overnight and the fridge, neither worked. This is the first time I’ve located this site so I’m looking fo more ideas. HELP
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Janna21
My 6 year old uses the patches for school. We’ve had remarkable success with them! She has been on them for 1 year now (with the summer off)As far as the backing, try sticking the patch in the freezer for about 15 seconds; the backing comes right off!
She has had the typical side effects of crabiness and irritablilty in the evenings & weight loss (but no loss of appetite)However, I do have a question about an odd side effect. Where the patches were on her back/hip there is no longer any pigment in her skin. She has large white squares, that have burned repeatedly over the summer and are still white and in the shape of the patches. Her pediatrician has never seen this or read anything about it. There is absolutely no pigment in these areas. Our doctor also took pictures of her back to give to the Daytrana rep. Has anyone else had this side effect? I should probably mention that my daughter is also a fair skinned red head.
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