“More Resources on Problems With the Daytrana ADHD Patch” Comments, Page 21
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243 Responses (Including 26 Discussion Threads) to “More Resources on Problems With the Daytrana ADHD Patch”
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Jacklyn201
CONTINUED: FROM BELOW:
5. now that I have treated the rash, got the sticky stuff off his hips and managed to get through a few days of 5am battles with the patch and about $60.00 in the septic we can move on to the effects.
6. Day 4 on the wonder patch: As I am now starting to loose my hair to the point of baldness due to the need to rip it out of my head with frustration. (not really pulling my hair out but feel like I need to) I am now sleep deprived and doing the same routine to add and remove the patch, my son decides that its time to have several screaming I HATE YOU, temper tantrums. Decides, for the first time, he HATES his brother and it was time to beat him up! (humm he has never done that before) So as I for the 3rd time today separate my boys from each other so as to not have to add a trip to the ER to my hectic life. Thinking why the hell did my mom decide that my sons needed the original solid metal Tonka truck when the plastic one could be used as a weapon and been less dangerous. I now have my new 6 yr old on the wonder patch in my room trying to calm him down and explain that he doesn’t really hate his brother and that hitting him with the truck wasn’t going to help, he proceeds to have an uncontrollable crying fit at which I was able to make out “you aren’t listening to me, or, you never listen to me.” I at this point have to just walk out of the room and let this just run it’s coarse. After he has calmed down I promptly remove the patch and with in 3 hrs, my son is back to his normal ADHD self.
On Monday I call the Dr., now rested tell her the issues and send the rest of the wonder patches to the lady of septic and take the next step in the long haul of medicine cocktails to calm the ADHD storm.
I find it funny that of all the reading I did on this wonder patch, I do not ever recall reading about any of the the emotional side effects I was so blessed to deal with. Maybe, just maybe this company has missed something….
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Marian201.1
Wow! What a week you have had! I realy believe that all kids react differently to any medicine they get. Especially with ADHD it is a non-stop puzzle from year to year for me with my son. They are growing and changing all the time. Something that works now will not 6 months later, something that works great on his buddy does not at all on him. The emotional outburst you described was something we had to deal with with my son when he wasn’t taking any medications. I always called them PMS moments for lack of a better descriptive word as he would react unreasonably, often physically wit hhis brothers, and he would know it but be unable to control it (hence the PMS label from me). On the patch he does not have these outbursts at all. So totally the opposite. When he has forgotten the patch I can always tell right away because of his moods returning. I hope you find what will work for your son so that for a while you can have some calm return to your home. But everything will be trial and error, at least I feel that way. Good luck and I am sorry this was such a bad experience for your son!
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Nicole201.2
I am so sorry that you have had such a bad experience with this patch. I don’t know how old your son is or his weight and how that may be affecting his reactions to the medicine. I have not had any of the side effects that you spoke of and my son has been on it last school year and so far this school year and still has not had any issues with it. I hope you can find something that works.
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samantha201.3
Wow, i live by the patch with my son. jacklyn did you ever think maybe your son has a secondary condition that you can see clearer since its not clouded by the adhd? They say MOST kids/people develop a secondary mental illness with ADHD. My son has ADHD, ODD & a mood disorder. All of the things you described your son was doing is exactly what my son does w/o any meds. Also your frustration doesnt help matters, maybe the patch isnt for you or your son. i have had the same problems from time to time but deal with them becuz the meds work for my son. he too was being suspended in kindergarten being threaten to be expelled. there is help in the school district for that laws to help with school. he CAN have an aide, its the law, try to get a 504 plan or an IEP to accomadate that. you have to be in it for the LONG haul, fight for your son or it gets no better. Now you have help with your husband at least i hope you do. i am a SINGLE parent dealing with my son & his issues along with 2 other children. you have to be patient, find the right meds for your son & fight fight for your sons rights even if it frustrates you, which it will but the end result will be joyful. Hang in there and need to change the additude and negativity or nothing will work.
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Marian202
An update. My son started the patch at the beginning of August, school started at the end of August. He had his ineterim report card last week and had mostly A’s and 2 B’s in reading and spelling! On top of that, the teachers are very happy with him. “he is one fire” said his math and science teacher (5th grade). He raises his hand to answer any question I ask. He is also excelling in his football team. Normally he would play well 50% of the time, the other 50% would be like he was watching the game not participating. A few weeks ago he was crying. When I asked what was wrong he told me he had so much homework, he felt overwhelmed. we talked for 10 minutes and then he started his homework. This was so great! No hysterics, no over reactions, a real conversation! And he handled it so well. 5th grade is a bad year for homework in our school. But he dealt with his feelings and emotions in a rational, normal way. I just wanted to share, partly because it is such a relief after years of him struggling, being upset, and my heart breaking.
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Nicole202.1
I feel the exact same way, my son is in 4th grade and started his patch last school year and things did a 180 and he is doing so well in school now. He can focus on his work and be able to show how smart he actually is.
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Jen203
Mary Ellen, pop the patch into the freezer for a minute or so and the backing will peel right off. If you fight with it your hands get warm and then no way will it come off. In fact, you might be peeling the medication off as well as the backing if it doesn’t come off easily and smoothly.
I found that it took a few weeks to really see the effect of the patch. You might want to give it a week or two. But if it really irritates your son’s skin then maybe it’s not the right med for him. Good luck!
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maryellen203.1
Jen, thanks so much for your posting; the emotional support I derive from this board is so important. My heart breaks and tears come to my eyes watching my son go through these medication trial and errors.
Just a few minutes prior to reading your post, I had decided to quit the patch (I sent him to school on his few last pills); but now, I think I might try it again. Perhaps while I’ve been battling the liner, some of the med has been removed with adhesive…..and I probably should give it a week’s try. It’s just been quite difficult for him and for his teachers and as a mother, its very hard to stand by waiting for the adjustment to end…….Thanks again Jen, very much!
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Jen204
Mary Ellen,
Glad to have helped. Another possibility is that the dose should be stronger during the day or stronger earlier in the day. Kids metabolize the medicine at different rates. My daughter is a “slow metabolizer” and so I need to get the patch on her quite early in the morning (about 6 am) to make sure that she’s focusing by the start of school. She also was on 15mgs at first. She stayed on that higher dose for most of the school year last year. Then after the standardized tests, and after her behavior had changed so significantly I thought it would be OK to try a lower dose, we switched to 10 mgs. She was successful then on the lower dose, whereas she needed the higher dose when we started her on the med. So she’s been on 10 mgs ever since (not summer). However, she might need to go up to 15 again, as she weighs more now and is a year older. Just some thoughts — hang in there!
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