Comments on “More Resources on Problems With the Daytrana ADHD Patch”
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135 Responses to “More Resources on Problems With the Daytrana ADHD Patch”
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Cindy Bowers130
I have a 13 year old daughter that has been take various strengths of concerta since age 9. She hates taking the concerta as it upsets her stomach. We have tried everything from pudding to peanut butter and nothing has provided her relief. We have tried ritalin with no success. Her doctor has considered adderall or statara. She was talking with a friend at school and found out that her friend was on the patch and really liked it. However, her friend warned her about the “sad feelings”. As I have researched this “patch” I am finding that it is generally used for 6-12 year olds. Is anyone currently using it with teen girls and what has been your experience with the side effects? She thinks that the patch will help her focus without the stomach ache.
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Fran129
Barry,
My son used to have red, itchy, inflamed areas on his hips after removing the patches, as well. For a while I put hydrocortisone cream on the area when I removed the patch, and the irritation disappeared. At this point, for whatever reason, his skin no longer reacts to the patch.
Good luck!
Fran -
Amy128
I posted on 17June that my insurance company discontinued covering the patch. I just found out today that they are going to override and allow him to have it. I had to have my doctor call Shire and request pharmokinetics data on the patch vs. oral and then talk to the pharmacy manager. But, nonetheless, all my griping and whining and pleading and insisting paid off, and he can go back on the patch. We’re all very happy.
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Barry127
I am 64 and have been using Daytrana for maybe four months. The simplicity of the patch is wonderful, and the increase in focus is terrific. However, I continue miss little things that if I spent another minute, I would catch them. I know that is for me to do! Annoying though. The objection I have is the red, itchy skin that remains after the patch is removed. I place the patch on the right and left hips and there remains impressions for days. Any suggestions. Thanks
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Michelle126
Stephen,
I saw your post just today about your choice not to medicate your son and that the “dope” the “specialists” pump into our kids and how that “dope” is just for the educator’s benefit. You are free (and encouraged) to make that choice for your child, but to make a sweeping statement like that about those of us who choose to medicate our children is offensive. Not only is it offensive to me personally, but your statement is wrong. I can say it is wrong, because I homeschool my ADHD daughter, along with her three siblings, and I know many others who homeschool their children with various needs, including ADHD, who have chosen medication as well. Putting our daughter on medication had NOTHING to do with it being for an outsider’s benefit. It had EVERYTHING to do with the physical, emotional, social and educational well-being of our daughter and the overall health of our family. Making a choice about medicating your child for ADHD is a very personal one, and one that none of us take lightly. I was very, very hesitant about putting my daughter on medication and after careful consideration we tried it (the Daytrana patch) and we now see how beneficial it is to her and our family. Our daughter has made tremendous strides academically, emotionally and socially that she could not make without this medication. I know because we did everything we could before we chose medication. Those of us who choose medication are not “doping” our kids, we are giving them an opportunity, through medication and other tools, to grow and learn to their full potential. ADHD is as real to a child who has it and his or her family as any other medical or emotional issue. If your child had a terrible infection that could only be cured by an antibiotic, would you not give it to him because you don’t want to “dope” him up? Antibiotics have side effects too, but in most cases and under careful supervision, the benefits far outweigh the risks. I would hope that in the future you choose your words about this subject more carefully while expressing your opinion. -
Vicky D125
My son has been on the patch since Jan and was doing great on it! Then just recently in the past month it was been itching ALOT so much that he itches it and it falls off! So last week they started him on Ritalin LA… OMG they SUCK!!!!!!!!!!! we started on 10mg of the Ritalin and the first 3 days were horrid. So DR upped it to 20mg.. not much better! I want the PATCH back!!!! Any ideas to help the itching????
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Murphy124
I am a 47 year old man that has been on the patch for the last 2 years at 30 mg. I was prevoiusly taking Ritalin LA until the patch came along. I was relatively happy with this medication until today.
I came close to passing out on the freeway ( tunnel vission etc. that someone descibed in an earlier post.) Never have had anything like this happen before. I immediatly removed the patch as a precaution. This was a patch from a new box. I have just renewed my scrip. in the last few days. If anyone else is having similar
symtoms it would be good to know about. I amon my way in to see the
doc. this afternoon -
Amy123
My insurance company abruptly stopped covering the patch in March with no warning. I went to pick it up from the pharmacy, and the pharmacist told me. We had to scramble to go back to his oral medication, and we’ve been working on it ever since and we can’t get it right.
I’ve appealed twice to the insurance company. The first time they just told me no, sorry. The second time, they told me it was being discontinued. I just called Shire and that is a LIE!
I’m so frustrated and upset. This medication worked great for my son. His grades went from all As and Bs to Bs and Cs and a D, and his behavior is an issue with everyone (including me).
I’m on hold with Shire right now trying to find resources or information to get this insurance company to do the right thing.
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Delene122
Give it at least three weeks unless his health or behavior can no longer be overlooked. It took my 5 year old daughter that long for her moods to regulate. Now we love it!
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Mary121
My son is 6 years old and has always had problems with anger, poor impulse control and hyperactivity. I can deal with the active side of him, however, his anger has escalated into him hitting, pushing and getting suspended from school because he hurt another child. We started the patch 1 week ago and the first few days were great. He was able to focus at school, was able to reason through things and seemed happy that those things came easy for him for the first time. However, the past few days he has been very irritable and angry for the first few hours the patch is on. Then after a couple hours of the patch being off, he is more wild and out of control than ever. Has anyone else seen these behaviors? It is so hard to decide if the meds are worth it in this situation. I would love to hear from others as I am really confused as to whether or not we have made the right decision. Thank you-
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