More Resources on Problems With the Daytrana ADHD Patch
If you’ve been following our articles on reader reports about the Daytrana ADHD patch, you’ll know that reader experiences vary widely. With over 170 comments about the methylphenidate transdermal patch, it’s time for another follow-up — and some additional resources for those experiencing problems with the patch.
With more than 170 comments, our previous posts on problems with Shire’s Daytrana patch for ADHD has drawn a huge reaction. A pharmacist with the Institute for Safe Medicine Practices has even been following the most recent thread (“Problems With the Daytrana ADHD Patch?”) as one way of monitoring public response to the patch.
To keep the page size from growing too huge, we’ve decided to start this new thread where readers can share their experiences of what works, what doesn’t work, what might work — and anything else you’d like to let others know about the Daytrana ADHD patch. In the previous two threads, readers have contributed work-arounds, warnings, experiences with Shire representatives, and a good number of thought-provoking questions about the patch. So if you’re looking for a solution, these threads are great places to check, and if you’d like to share something new, please let us know here!
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This article was last reviewed by on Monday, 16th July 2007. You can leave a response below.
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119 Responses to “More Resources on Problems With the Daytrana ADHD Patch”
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sweaver27119
My 9 year old son was on the patch for about 6 months. He had some initial side effects of mood swings which went away within the first few weeks. Trouble sleeping and a loss of appetite remained a problem. On the upside ALL of his grades dramically improved. He could focus and do homework. For the first time he was able to absorb what he was learning! Unfortuniately, he recently had to be changed to another medication in pill form because he is allergic to the patch adhesive. At the begining of treatment the site was itchy and red when removed. Then slowly it began to scab, cause welts under the patch. Red areas were no longer red, his skin was turning purple under the patch. Until finally the patch began burning his skin leaving him with scars! Initally his doctor said this is a common side effect with this medication, especially since he already has a skin condition. But after after seeing how bad it had actually gotten she now says it’s an allergic reaction. Just a heads up for anyone who’s experiencing similar problems. I wish they made the patch in pill form. I can’t really say anything bad about it, minus the allergic reaction, because it worked so well for him. Hopefully he will do just as well or more so on the new medication.
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TT118
My daughter has been on the 10mg patch for 5 months. One box turned out to be ineffective. We could tell ’something’ wasn’t right about the patches - backing peeled off easily, skin didn’t turn red under the patch, and her behaviors were wildly out of control. After a week, we were finally able to replace the box. The new patches immediately corrected all the problems. Now, we have another box that seems to be ineffective. Same problems.
Has anyone else experienced this? We love the patch, but cannot stay on this medication if the product is inconsistent. -
Darcy117
Tina,
You shouldn’t be cutting the patches at all. According to what I have learned, it could be causing the medication to not be delivered to your son’s system correctly. You should get the 15mg right away and use those instead of cutting the patch.
My son (12) has had wonderful success on the patch.
Good luck to you,
Darcy
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Sharon116
My son has not had that experience, but we have found that it takes a few hours to start working. We put it on at least 2-3 hours before school starts, and that seems to have the optimal effect for my 10 yo son. Best of luck!
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Tracy115
Tina,
My 15 yrs old son has been on the patch for over a year. It has been the best medicine we have tried since he was 5. And believe me, we have tried them ALL! LOL
He also experienced similar symptoms and I would have to agree that it is due to a dose he has not adjusted to yet. Call your doctor immediately and ask for a new script for the 15 mg dose. One his body has become adjusted to it (takes about 2 weeks), if he needs to increase, then you can go back to using the 20 mg patches that you already have.
As far as the episode of passing out, that also happened to my son. He said he felt “funny” and it scared him. Next thing we knew, he was passed out cold on the floor! He didn’t stay down long, but when he woke, I had checked all of his vitals and they too were completely normal. His doctor and I think what happened was merely a Panic Attack. The does he was on, was a bit too strong at the time, making him feel “high” and that feeling caused him to panic.
Hope this sheds some light on things and maybe help you breath a little easier knowing that the Daytrana most likely did not effect his heart at all.
Tracy -
Tina114
I was wondering if anyone has experienced severe chest pains with the Daytrana 20mg patch. My son was on the 10mg patch for 2 months or so. The teachers had called and said that the afternoon teachers were seeing serious improvements and the morning teachers were not. So the Dr. wrote his script for the 20mg patch from the 10mg. Not sure if he knew there was a 15mg. patch. I did not till a few days ago. He said he was experiencing symptoms that sounded a little like depression, which can be a side effect of this type of drug. So when I did research and noticed that the strength of the drug is related to the size of the patch. I decided to trim about a 1/4 of the patch off. This helped and basically caused the symnptoms to stop. Well yesterday he had a weird episode. He got dizzy and had tunnel vision for a few min. then calapsed. The nurse at his school said that he did not loose consciousness. And immediately his head was pounding, his stomach was hurting and he was having severe chest pains. His blood pressure, heart rate were all normal and his blood oxygen levels were fine. His Dr. even said that if he was not seeing the pain he was in, listening to his heart gave him no sign that there was any problems. We decided that this was muscular contractions, and he did not know what was wrong. They did not think it was the medication. I am not sure of that. I know that his grades have gone up, his teachers are continuously praising his improvements, so I am between a rock and a hard place. Cody was not passing the state required testing here in Texas to advance to the next grade level and to graduate before the patches. He got a 59 on the last test taken in summer school last year and made a 79 on the one this year. So I am not sure what to do. Against my better judgement I put the patch on him this morning and the nurse at his school is keeping a close eye on him for me. All his labs and chest X-ray were fine at the ER yesterday. So I was wondering if anyone else has had these types of symptoms on the patch? If you have please, let me know so I can have the Dr. check things out and either lower his dosage or try a different medication. They all tell me this could be one of the freak things that never happens again. But as a mom I have to figure out what is best for my son and what will not put him at any kind of risk for long term damage. I want to trust the Drs. but I am having a problem doing that right now. So please if you have seen these symptoms in your child on the patch let me know. I will subscribe to this thread so I get all of the responses via email. This way if there are those who have and found out it was the patch dosage I can print the responses and take them to his Dr. Thank you for reading this I do appreciate it, and thank you in advance for your responses.
Blessings,
Tina -
maggie113
My 7 year old started on the patch 1 month ago. He is on the 15mg. This was his first med after a ADD diagnosis. The change in him was immediate and incredible. All of his teachers sent home notes praising his new behaivor. He had stomach trouble the first 3 days but nothing since. He really likes school now and no longer says things like “I’m just stupid”. He was so frustrated (us too) and now he is proud to show us his classwork. He went up 1 reading level in 1 week. It is a miracle. We were completely against medications until we felt we had exhausted all other options.
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Delene112
Gina, don’t fret about the medicine deal. My husband was the same way, but I knew that her teacher at school said it took her several attempts to get her to sit down long enough to do her work. She’s still busy but at least she can now get her school work done without having to stay in for recess to finish it. She goes to a private school so we are fortunate that the class size is smaller and they will take up more time with her. But, now they don’t have to. Her report card was wonderful last week and I thank the 10 mg Daytrana patch for it. I know that her little mind was buzzing way to fast to concentrate with distractions all around her. Her teacher said she had never seen such a change in a child before. We love Daytrana because she can still be her bubbly busy little self and not sedated like some meds can do, but still let her mind slow down enough to concentrate on her school work. I love this blog too. It is such a great support gruop. Good Luck!
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Gina111
Delen, Thank-you for your quick response. It is great to have a blog page like this. My husband is against medication and tells me our son is all boy. As a mom I have observed him in school and have spoken to his teachers. I am looking forward the changes we will see once the medication begins to regulate.
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